Calling All Authors
Your Opportunity to Contribute to an Anthology on life with Turner Syndrome
Claudette Beit-Aharon, a mother of a girl with TS is creating a book of essays written by women and girls who have Turner Syndrome. The aspiration of the book is to provide a view of TS as a challenge and opportunity. The focus will not be exclusively on medical problems, but on personal growth, understanding, and reflection.
Turner women and girls are encouraged to write and share in 2000 words or less, their tales of trial and triumph; perceptions of the world and life; views on fertility and sexuality; relationships with parents, friends, siblings and partners; and visions, dreams and reflections. From the submissions, we will be selecting approximately 40 essays, roughly equally divided between those from girls and women with TS.
There will be an appendix with medical info on TS, with references to online information, and a glossary of terms. Writers will not have to explain these details. Plus, contributors will have the opportunity to vote and may make suggestions on the title. The current working title is The Long and the Short of it: Turner Syndrome Women and girls share their insights.
Submissions or questions can be sent to Claudette Beit-Aharon at
Claudette.beitaharon@gmail.com
Tuesday, June 30, 2009
Turner Syndrome Information Days
TURNER SYNDROME SOCIETY OF CANADA
INFORMATION DAYS
Three TS Information Days were held in the fall of 2008, in Ottawa, London and Thunder Bay, as part of our outreach program funded by the Ontario Trillium Foundation. Each was followed up in the spring of 2009 by a group meeting to continue planning local activities in those cities.
Future plans include expanding this Information Day program beyond Ontario. We are developing proposals to hold a similar event in Halifax within the next year.
This Information Day outreach project was inspired by a very successful Toronto event organized by the Hospital for Sick Children in April, 2006. Click here to read the newsletter distributed to participants following this event.
OTTAWA, OCTOBER 18, 2008
This informative meeting featured medical panelists Dr. Alex Ahmet, Dr. Yaa Amankwah, Dr. Tannis Vause, and Dr. Lilian Lai. Afternoon workshops gave Ottawa chapter members and some new families the chance to network, as well as to discuss educational and bone health issues. The girls had the chance to create scrapbook pages in their own workshop.
Follow-up activities for the Ottawa chapter have included a new email group, and monthly social get-togethers in the spring of 2009. To join the Ottawa email group, contact Patti Laforest at p.laforest@rogers.com.
THUNDER BAY, OCTOBER 25, 2008
Irena Hozjan, nurse practitioner from the Hospital for Sick Children, traveled to Thunder Bay to present an overview of TS health issues. Dr. Abu-Bakare spoke on endocrine issues, and Melanie Laird from the Thunder Bay District Health Unit informed us about healthy lifestyle issues related to diabetes. The discussion session after lunch was particularly appreciated by the new families who attended!
LONDON, NOVEMBER 1, 2008
A TS Overview by Dr. Lisa-Ann Fraser, and a medical panel with Dr. Cheril Clarson, Dr. Herschel Rosenberg, and Dr. Stephen Power led off the day, followed by afternoon workshops sharing personal stories and discussing educational issues – plus mask-making and story telling for the girls.
A follow-up meeting February 21, 2009 marked the beginning of a new London area support group. The group’s first plans were for a park picnic May 30. For information on the new London group, contact Lindsay Traichevich at lindsay.traichevich@hotmail.com
Three TS Information Days were held in the fall of 2008, in Ottawa, London and Thunder Bay, as part of our outreach program funded by the Ontario Trillium Foundation. Each was followed up in the spring of 2009 by a group meeting to continue planning local activities in those cities.
Future plans include expanding this Information Day program beyond Ontario. We are developing proposals to hold a similar event in Halifax within the next year.
This Information Day outreach project was inspired by a very successful Toronto event organized by the Hospital for Sick Children in April, 2006. Click here to read the newsletter distributed to participants following this event.
OTTAWA, OCTOBER 18, 2008
This informative meeting featured medical panelists Dr. Alex Ahmet, Dr. Yaa Amankwah, Dr. Tannis Vause, and Dr. Lilian Lai. Afternoon workshops gave Ottawa chapter members and some new families the chance to network, as well as to discuss educational and bone health issues. The girls had the chance to create scrapbook pages in their own workshop.
Follow-up activities for the Ottawa chapter have included a new email group, and monthly social get-togethers in the spring of 2009. To join the Ottawa email group, contact Patti Laforest at p.laforest@rogers.com.
THUNDER BAY, OCTOBER 25, 2008
Irena Hozjan, nurse practitioner from the Hospital for Sick Children, traveled to Thunder Bay to present an overview of TS health issues. Dr. Abu-Bakare spoke on endocrine issues, and Melanie Laird from the Thunder Bay District Health Unit informed us about healthy lifestyle issues related to diabetes. The discussion session after lunch was particularly appreciated by the new families who attended!
LONDON, NOVEMBER 1, 2008
A TS Overview by Dr. Lisa-Ann Fraser, and a medical panel with Dr. Cheril Clarson, Dr. Herschel Rosenberg, and Dr. Stephen Power led off the day, followed by afternoon workshops sharing personal stories and discussing educational issues – plus mask-making and story telling for the girls.
A follow-up meeting February 21, 2009 marked the beginning of a new London area support group. The group’s first plans were for a park picnic May 30. For information on the new London group, contact Lindsay Traichevich at lindsay.traichevich@hotmail.com
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