Tuesday, June 30, 2009

Turner Syndrome Information Days



TURNER SYNDROME SOCIETY OF CANADA
INFORMATION DAYS

Three TS Information Days were held in the fall of 2008, in Ottawa, London and Thunder Bay, as part of our outreach program funded by the Ontario Trillium Foundation. Each was followed up in the spring of 2009 by a group meeting to continue planning local activities in those cities.

Future plans include expanding this Information Day program beyond Ontario. We are developing proposals to hold a similar event in Halifax within the next year.

This Information Day outreach project was inspired by a very successful Toronto event organized by the Hospital for Sick Children in April, 2006. Click here to read the newsletter distributed to participants following this event.

OTTAWA, OCTOBER 18, 2008

This informative meeting featured medical panelists Dr. Alex Ahmet, Dr. Yaa Amankwah, Dr. Tannis Vause, and Dr. Lilian Lai. Afternoon workshops gave Ottawa chapter members and some new families the chance to network, as well as to discuss educational and bone health issues. The girls had the chance to create scrapbook pages in their own workshop.

Follow-up activities for the Ottawa chapter have included a new email group, and monthly social get-togethers in the spring of 2009. To join the Ottawa email group, contact Patti Laforest at p.laforest@rogers.com.

THUNDER BAY, OCTOBER 25, 2008

Irena Hozjan, nurse practitioner from the Hospital for Sick Children, traveled to Thunder Bay to present an overview of TS health issues. Dr. Abu-Bakare spoke on endocrine issues, and Melanie Laird from the Thunder Bay District Health Unit informed us about healthy lifestyle issues related to diabetes. The discussion session after lunch was particularly appreciated by the new families who attended!

LONDON, NOVEMBER 1, 2008

A TS Overview by Dr. Lisa-Ann Fraser, and a medical panel with Dr. Cheril Clarson, Dr. Herschel Rosenberg, and Dr. Stephen Power led off the day, followed by afternoon workshops sharing personal stories and discussing educational issues – plus mask-making and story telling for the girls.

A follow-up meeting February 21, 2009 marked the beginning of a new London area support group. The group’s first plans were for a park picnic May 30. For information on the new London group, contact Lindsay Traichevich at lindsay.traichevich@hotmail.com

No comments:

Post a Comment